Friday, October 24, 2008

Fundraiser for a 6 Month Old

Want to thank the reader who forwarded the following:

LONGABERGER BASKET BINGO
@BUSHKILL TOWNSHIP FIRE COMPANY
SUNDAY, OCTOBER 26 (1:OOPM)
ADVANCE TICKETS: $20 (20 GAMES AND 10 FREE CHINESE AUCTION TICKETS)
TICKETS AT DOOR: $20 (20 GAMES)
PROCEEDS BENEFIT AVERI HEFFELFINGER. AVERI IS 6 MONTHS OLD AND DIAGNOSED WITH RETINAL DEGENERATION. EXPERIMENTAL GENE THERAPY APPEARS TO BE AVERI'S ONLY HOPE TO SEE AGAIN AND HER MOTHER'S INSURANCE CARRIER DOES NOT COVER THESE EXPERIMENTAL PROCEDURES.
FOR MORE INFO: 610-625-2043 OR 610-442-3150

1 comment:

Unknown said...

Ross,

As a member of the clinical trial community, I would suggest that the Heffelfingers check out www.clinicaltrials.gov and search for clinical trials focusing on this disease. While insurance companies do not reimburse for trials, most (if not all) drug companies (sponsors) will reimburse for time, travel, and meds during a clinical trial.

Thanks,

Michael Ohrwashel
Vice President
Integrated Clinical Trial Services